So talk about feeling like a failure to your child. We finally know what the name is of what is going on with my 14 year old son! We may have a name but really no answers!!!!
(Cody 2008)
After almost 2 months of waiting the Genetics Department called and has a name for us....Cody has a 10p13 deletion and has OVER 20 Genes missing from his body.....not sure what genes and not sure how important those genes are???
I can tell you for the last 14 years I have been searching for something, I knew something was not right but no one agreed with me (he has ADHD) so finally as he is in the 7th grade and barely holding his own at school :( I decided I was not going to stop searching until someone heard me..... Yes he has ADHD and OOD and an IQ of 72 but he also has 10p13 deletion.....
Love you Steph! We are here with you on this journey for the whole duration!
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